Posted in Books, Canada, Chocolate, Fibromyalgia, Movies, Political, Televison, Uncategorized

Deep Freeze within a Deep Freeze

1funny47  I’m not going to break into song or grumble about the weather being so unbelievable cold, even though it’s unbelievably cold. There are places in the world right now that are actually too hot – that puts things into perspective. What a big world we live in with people going through completely different things.

I had another deep freeze moment that didn’t involve my coat crackling as I dodged cars flying around in the ice/slush/snow, this deep freeze from a dentist. Any dental work with Fibromyalgia is a pain, literally. So I’m feeling the effects from a deep freeze here in a deep freeze.

So what are my options?
1. Suffer in silence (say that a few times fast).
2. Whine a little then move on.
3. Choose to embrace this double winter wallop with grace.
Is there a 4th options of doing a bit of all 3, I’ll take that one.

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In my pained state, I keep thinking, if life gives you lemons, make lemonade. I don’t know how many times I’ve heard this, maybe people wanted me to remember it as truckloads of lemons kept hitting me on the head. I like lemonade, but it can get cloying after awhile, as can platitudes.
While platitudes and clichés can sometimes be inspirational, helpful, even comforting, I hope a steady diet of sunshine and old chestnuts hasn’t made us more susceptible to compliance. Hasn’t left us vulnerable to believing and submitting to corruption, lies, and neglect within our governments and corporations.

Life is hard,
Life is unfair.
Living life in hard mode.
It’s a hard knock life.

I chose to drink a little lemonade, once my lip unfroze (dribbling is so unattractive), then say no, I will not go gently into anything, I will fight on, through the throb and bitter chill.

Of course, all of this might be nonsense induced by pain and the extreme cold weather. What would Doctor Zhivago do?1funny48

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Posted in Autism, Fibromyalgia, sleep, Uncategorized

Is Fibromyalgia Just Another Word For Lazy?

You’re lazy. You’re a whiner. You’re attention seeking. It’s all in your head.  Fibromyalgia is just another word for lazy. Feel free to add more. I’ve heard them all. Image

Let me get this straight, the medical profession conspired and effectively implemented a fake syndrome just to cater to lazy people. Sounds perfectly reasonable. It’s not as if doctors have anything better to do. Or have reputations and licenses to protect. Or have ethics. And what exactly would their motivation be? Why would they make up an illness? Aren’t there enough illnesses? Cancer alone should keep them hopping.

There are many health issues that can not be found through standardized testing, for example: Multiple Sclerosis, ALS, Cerebral Palsy, Parkinson’s, Autism, Lupus, ADD/ADHD, wheat or gluten ‘sensitivity’, acute back pain, as well as many mental health issues.

Does that mean they don’t exist? Does that mean the people that have these issues don’t suffer, don’t feel, don’t actually have these medical challenges? Image

People like to mock. I get that. I’d guess those same people would want doctors and people to believe them if they were ill, even if there was no standardized testing for their illness.

To the best of my knowledge, there’s no standardized testing for ignorance or stupidity yet either, but I’d buy stocks for that future booming business.

I didn’t ask to be ill and I certainly didn’t ask to be mocked and harassed because I’m ill. Even if it was just ‘in my head’, shouldn’t anyone with a health issue be treated with dignity and respect?

Maybe we need a standardized test for intolerance.

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Posted in Autism, Fibromyalgia, Uncategorized

Fibromyalgia is a Four Letter Word

This isn’t a whiny post (at least I’ll try, no promises), or a ‘it can be fixed blog’, or whatever. Just a few thoughts about why people think Fibromyalgia isn’t a real syndrome, that it’s just lazy, unmotivated people and mostly, why I don’t have all the answers.

 

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Let’s begin at the end, I don’t have all the answers because I don’t sleep enough.  Also, I’m not a million years old.  In addition, I’m certainly not a super genius.  Oh, did I mention I don’t sleep enough?

People prefer to think people with disorders such as Fibromyalgia are lazy because they don’t want to accept that you could wake up one morning and have something like that or Chronic Fatigue Syndrome or Lyme Disease and so on.

Instead of doing the whole there-but-for-the-grace-of-God-go-I thing, many people just decide that people with these illnesses could do better if they just got up and did something, or they just aren’t motivated, or they’re lazy, or they’re not trying.

It’s easier to believe that than believe someone who was full of energy and often an A Type Personality can suddenly be fatigued, full of pain, insomnia, frustrated, sad, have massive struggles to function, and so on.

fhfif4Therefore, Fibro becomes a joke, a stain, a dirty word because otherwise people would have to accept the reality that people get sick.  They get chronic illnesses, they get terminal illnesses, and they live a life of agony and sometimes, they die.

It’s people saying someone with cancer should fight the cancer as though that will fix everything.  I wonder if people ever thought of how that makes people feel when you’ve lost a loved one to cancer?  Oh, so my loved one just didn’t fight hard enough, well, thanks, that makes me feel so much better.

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The same goes for those who’ve lost a loved one to suicide. I’m sure they feel horrible enough without others implying their loved ones gave up, chose to leave, or just didn’t fight hard enough.  Yes, poking a toothpick at a dragon works so well.

I don’t live in someones head so I can’t say if they tried, if they fought, or if they chose, but neither does anyone else so why are so many people qualified to make these judgmental statements?

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Instead of mocking someone with an illness, try having empathy for him or her.  I’m sure there are some pitiable individuals who would prefer to be ill than well, but come on, does anyone seriously believe that’s a majority?  Most people would choose to be well. 

Most people would choose to have a full life, a life free of pain.  Most people would choose to beat cancer. Hell, most people would choose not to get cancer at all.  Most people would choose not to have a mental illness.  If there was a choice involved.

People are finally coming around to the belief that people who lead a homosexual lifestyle didn’t chose to be that way, it’s just the way they are. It has taken a long time and there are still haters out there, but I bet so many people are happy to see a light at the end of that rainbow.

asgoodas5I wonder when that day will come for people with chronic illnesses like Fibromyalgia, or people with mental health issues, or people with Autism, etc.  I wonder if or when people will see them, really see them, for who they really are:  your Mom, your child, your sister, your friend, your co-worker, your Dad, your teacher, your brother, your minister, your neighbour – just people.

Don’t judge people.

Have a little empathy.

Those people might be interesting, or fun, or brilliant, a hope for the future, a good friend, but you’d never know because you made assumptions.

Don’t miss out.